Get it Down: 31 for 21 Day 11
Here are 21 things about Jack and our family that have to do with Down Syndrome...
- We didn't find out Jack had DS until he was two weeks old when a very observant pediatrician questioned the shape of his eyes.
- Jack was born on time with no complications. We went home after 2 days.
- My Ultrasound did not pick up Jack's AV Canal Heart Defect, a defect specific to DS.
- Jack had Open Heart Surgery to repair his AV Canal at 8 months old.
- When I was pregnant with Jack, my AFP Quad Screen came back negative.
- Jack has Physical Therapy 2 times a week. He started at 2 months old.
- Jack goes to Group Therapy two times a week for 2 hours. He has OT, PT, Communication, Music, Cognition, and a lot more. He started at 2 months old. I go to this too.
- Our team Jammin' for Jack raises money and walks in our local Buddy Walk with many of our family and friends.
- I have met some of the most amazing moms and their children...all because I had Jack.
- It took my husband and I about a week to grieve the diagnosis once we found out...then we were moving forward.
- I found DownSyn when I was researching everything and anything I could find about DS while we were waiting for the test results to come back.
- I got pregnant with Jack when I was 30.
- Other than his heart defect, Jack has had no other health issues.
- Jack rolled over at 6 weeks, sat up one week after heart surgery at 8 months, army crawled at 12 months, pulled to a stand at 14 months, and cruised at 16 months. Next step is crawling on all fours and walking.
- Jack's first sign was "more." Two months later, he was up to 20 signs.
- Raising Jack is more normal than not.
- Jack has non-disjunction Trisomy 21.
- I have found that I am soooooo excited at every milestone Jack meets. Our family celebrates the things we have always taken for granted with our girls.
- This summer, we went to an Angel game with a lot of people from the Buddy Walk in our section. My husband and I LOVED seeing all the different ages with DS. We were fascinated...didn't even watch the game really...just eavesdropped on everyone's conversations, LOL!
- Jack has lots of girlfriends that we frequently get together with for Disneyland or beach days or anything else we can think of.
- Our days are richer because we were blessed with our son Jack, who just so happens to have an extra chromosome. He has changed the hearts and minds of many.
1 comment:
What a great post! I love seeing the different ages of kids with DS too. Now that Kallie is older I really like seeing the babies and remembering all those fun toddler times!
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